A 12-year outdated boy from Helston who suffers with complicated well being and studying points is elevating cash for a charity near his coronary heart.
Freddie Gwilliams has already began his mission to boost funds for the Youngsters’s Hospice South West by strolling day-after-day for 30 days.
His mum Hayley describes her son as a cheeky, fun-loving, mischievous 12-year-old boy.
“He smiles continually and has a depraved sense of humour. Freddie loves nothing greater than taking part in with a soccer, listening to music and driving his distant management automotive,” she mentioned.
However sadly since Freddie was born he has had a number of operations resulting from well being issues as he will get older, which suggests spending lengthy intervals of time in hopsital.
He ended up shedding his massive bowel which meant having a suprapubic catheter inserted and now must be fed TPN (complete parenteral vitamin) by way of a hickman line in his chest – a type of feeding that completely bypasses the intestine and as an alternative feeds right into a tube instantly into the center.
Freddie has just lately been identified with DDX6 syndrome, a uncommon situation that little is understood about.
This situation leaves Freddie extreme studying difficulties, unable to stroll and unable to speak. He has scoliosis, kyphosis and sleep apnoea needing in a single day cpap. He additionally has an ileostomy, a gastrostomy and a jejunostomy to assist take care of the failure of his intestine.
Though Freddie suffers with these situations, he’s now decided to boost cash for the charity who’ve supported him over the previous few years by taking to his strolling body when he’s feeling as much as it, and strolling alongside supported by his household, together with sister Evie, 13 and brother Casper, 7.
Freddie and his siblings like to take pleasure in taking part in ball collectively and since he spends most of his time mendacity down, Hayley mentioned: “It is good to see him get up and kick a ball with them.”
On Freddie’s newest stroll together with his dad, he managed half a mile of strolling – despite the fact that he’d been awake since 4am.
When Freddie goes on his walks his favorite factor to see is canine, despite the fact that he’s non-verbal, Hayley mentioned: “His eyes mild up.”
Hayley has arrange a JustGiving web page which you’ll donate right here: https://www.justgiving.com/fundraising/Freddiewalk
There may be additionally a Fb web page about Freddie’s journey which is known as Life with Freddie.